Shiloh- Civil War Battlefield Trip

In July, my mom and I took the boys to Shiloh to tour the Civil War battlefield and museum. We did this because Carson is very interested in wars and army men and thought it would be a good time to get a little history lesson in. It was a HOT day!!

Here the boys are trying on some uniforms from the North and South. Carson is on the left and Roman is on the right...ages 8 and 5.

Our Story

This is the story of our son Roman and his journey with a congential heart defect. At 2 months old, Roman was diagnosed with a congential heart defect called coarctation of the aorta and also bicuspid aortic valve. They are 2 different conditions that can be found apart or they can occur together...he has both conditions. Coarc as I will call it, was the most serious of the 2. It is a fatal condition when left untreated especially to the degree that Roman had it. It means that his aorta was narrowed down to the point of like a pencil in one spot instead of being nice and wide the whole way through. It caused his heart to work extra hard to pump the blood out because it had to push it through such a small opening. Half of his heart became enlarged because of this and his blood pressure was high except in his legs which was so low that they couldn't register it at all in one leg. The aorta delivers blood to the lower part of your body and his lower part of his body had been deprived of enough blood up until it was fixed by surgery. He was diagnosed after being sent to a ped. cardiologist for some tests when his pediatrician heard a murmur that wasn't present at birth and had trouble finding his pulse in his legs at 2 months. We went to Vanderbilt Children's Hospital and they confirmed the diagnosis and then decided to do heart surgery the next day. They took out the narrow part of his aorta and stitched the wide parts back together. He was in the hospital for about a week. Recovery at home was a little longer...couldn't pick him up under his arms and he had meds that had to be adminstered at certain times through the day. He spent one night in the red pod which is critical and then the green pod which is still critical but a little better and then finally got his own room at the hospital. Neal and I stayed with him and never left until he did. We say now that it was the week that time stood still. Nothing mattered anymore. Just our son. We remained very calm and had faith that he would be okay. Lots of people were praying for us and it really gave us a peace that is hard to describe. He still has bicuspid aortic valve disorder and they monitor it yearly at VCH as well as keep an eye on his aorta to make sure the narrowing does not reoccur. We had our checkup there this week and they did a heart ultrasound and an EKG and gave him a very thorough work up. They found that his aorta is getting stronger and his valve isn't leaking like it was at the last visit. It is the best news we could have received. I don't understand why our family has been picked to go through this but I do know that God is in control and it has given us fresh eyes to what is really important in life. Through Roman's journey we were introduced to a wonderful charity, Saving Little Hearts. They brought us a surgery care package while we were in the hospital with him  that was filled with hospital survival necessaties and info on his condition. They even gave us a camera and a journal to record our time there! Saving Little Hearts raises awareness of congenital heart defects and provides surgery care packages to young heart patients at a lot of different hospitals. For more info on them you can google them..they have a website with items available for purchase. Roman has 2 scars that serve as reminders of the miracle of what we went through. If you know him personally, don't mention his scars because he has become self-conscious about them. We are working on fixing that! Thanks for taking the time to read our story. Hope it helps someone!

Hitting the Polls with the Boys

Today I took the kids with me to vote. I always vote in the big elections such as presidential elections but to be honest when we first moved here and didn't know anyone I didn't vote in the local ones simply because I didn't know who to vote for at the time. The boys were aware that school was out today due to elections and I wanted to set a good example for them and exercise my right to vote. I took them with me and prepped them a little on the way to not be loud, keep hands off of the election equipment, etc. They usually are very well behaved and do not cause problems in public. Can you see where this is going? It was a short line and I thought "we've got this..no problem" as I walked in. Overconfidence can sometimes be a downfall for people. Isn't there a saying that pride comes before the fall? A stranger who I'll call Chatty Cathy became the turning point. She kept talking to me and asking questions in line and the boys began to think...hmmm this might be a good time to pick each other up in the air, etc. When we are distracted is when kids seize their little opportunities. Nipped it in the bud and then headed to the booth where the little old man began to go through the process with me. After all that coaching on not touching the equipment...five little fingers reached out repeatedly and kept grabbing at the buttons. Luckily he didn't reach any. The boys started fighting over who was standing closer to me so I told them to go look out the window behind us at the playground outside. The little old man then said..."BOYS! I need you to move around to the side of the table over there. No one is allowed behind the voter." I quickly wrapped it up and headed for the door. I was proud of myself for going as we left walking down the sidewalk past the campaigners. When I reached my car I exercised another right of mine... :)

Back To School

Wow! Can't believe we are back to school already! The baby of the family has started Kind. this year and the oldest is in 3rd grade. Roman loves his new backpack and wears it around all the time. Carson has already started learning multiplication tables and is starting on cursive writing. I think it's gonna be a big year of learning for him! We are trying to get back into the routine of school but so far the mornings are still hectic. I think I'm gonna have to start getting all of us up earlier in the morning. The kids are just moving too slow and I am having to rush them (which stresses me out). We have been putting them to bed a little earlier since it is taking them so long to wind down in the evenings. I don't get it! I know Carson in particular is so tired but he fights sleep so much. Roman is doing half-days this week but will start full days next Monday. It was hard yesterday because he had to walk in by himself (except with Carson). He just seems awful little to be getting out at the curb and finding the gym. He says he can do it himself and he doesn't want Carson to help him. I have told Carson to walk with him to the gym every morning and it's sweet to see him put his arm around his little brother and walk a little slower so he can keep up. I think I am raising 2 very good boys!